What Was Your PSA Level When Diagnosed?

did you check if you are PSMA positive??? That could be a reason it did not show. There are other ways to check then.

hi Rob, i was tested for PC after a routine blood test gave PSA of 5 in Oct 2022. In Nov 2023 my PSA was still 5 and i await a blood test in May 24 My gleeson score is 6. I remain on AS and my consultant says i shouldn't worry too much.

Glad to offer some personal experience - I did a video journal on my radiaton treatment - it can be found at www.theProstateCancerCoach.com . Good luck

hi Rick, is this your personal choice instead of being on AS?

The practice I go to considers BCR at .2 or higher (east coast US). I achieved that 2 years after RP and later on during the ADT/Rad process got a second opinion from a GU at a Comprehensive Cancer Center and he stated if you have another reoccurrence after this one, wait until your PSA hits 2.0 and we will be able to find it and treat it. I can't say I have heard of PSMA's finding anything at .2 or lower levels. The bed is usually the target after the first relapse without conclusive evidence. The second time around I would want evidence of where the cancer is, instead of guessing where to treat. Currently, I am undetectable post radiation and ADT and have my 6 month PSA/T test in January. If I could get proton radiation, that would be the direction I would want to go. IBRT and EBRT can damage healthy tissue and cause a plethora of rectum, bowel, and bladder related problems that drag on forever. 10 months later I am living those side effects. Best wishes to all.

Hi . The PSMA is pretty sensitive even at low levels. Here is a study that found "PSMA PET/CT study is a very sensitive and specific study in the detection of recurrent prostate cancer after initial radiation therapy, as the positive PSMA PET/CT finding was seen at a PSA level as low as 0.22 ng/ml in our patient population:" https://jnm.snmjournals.org/content/66/supplement_1/252146. That said, as noted here (https://www.petimagingflorida.com/helpie_faq/at-what-psa-level-should-i-get-a-psma-pet-scan/), while it has been found to be effective above 0.2, the higher the PSA the more likely it is to detect the recurrent cancer. Best, Richard (Team Member)

This is my story--
This was 2021-------

So my life:

Yearly exam Blood test showed elevated PSA 3.15, February 2021 Second Blood test confirmed elevated PSA 3.05 March 2021

Primary Care Physician said to wait 12 months not to worry, I said NO, let’s escalate it.

PCP referred me to urologist
April 2021
Urologist said your probably fine, we can do a Ultrasound or a biopsy if you want ?

I said “ ultrasound “

Ultrasound came back showing abnormalities April 26

Urologist order Biopsy
April 30

Biopsy POSITIVE for carcinoma
Stage 2–Gleason 7
to be updated by any further findings —

Then the following tests were ordered

Abdominal and Pelvic MRI
Jun 4th
Negative

Whole Body Scan
Jun 15
Negative

Hearing Test
Jun 16
Hearing is level is fine

Prostate MRI
Jun 28
Positive

Brain MRI
Jun 28
Negative

After all the tests were completed —decision time — had an appointment with urologist / surgeon on July 1 this meeting is to decide if any of the following would help:

1) Do nothing
2) Radiation
3) HiFu
4) Surgery
5) Hormone Therapy
6) Combination of anything above
7) Palliative Care

We decided on surgery

Meet with robotic surgery July 2nd,

Had surgery July 22nd.

Pathology report indicates confined to prostate

Nerve damage, they clamped nerve bundle by accident, had to burn off permanent clamp no movement inward of right leg, expected to heal 3-6 months
++++++++
Update 2023
No PSA detectable
Leg is still an issue, however movement is good strength is 50%
Other that that the surgery was and still is very intense mentally, side-effects not terrible however not like before

I thought I would share, if you have questions let me know

I was 3.9 with Gleason 3 + 4